2 years ago today, oct. 6th, we found out that you had truncus arteriosis. There were many signs that we were able to deny, attempting to believe that you were healthy. As your mom, it broke my heart to think that you were not healthy and whole. Yes, you had all of your fingers and toes, but it was your heart that was broken.
I cried while we were at the cardiologist, knowing deep down that something was wrong. The echo brought more tears while the technician began to label the parts of your heart, this is never a good sign. You were just so peaceful and innocent. your doctors told us the worst news, "your son has a very rare heart defect. Only 1-2% of the population is affected by this heart defect. " and then the best news, "but it is treatable." At that is when the roller coaster began. We were wisked away to Children's Hospital to meet too many people. Even thought it was a Friday, everyone that needed to see us, i.e. doctors, surgeons, chaplins, nurses, social workers, discharge planners were all there. It was all such a whirlwind and we hoped that it was all just a bad dream. But it was not a bad dream, it was real and it was OUR life. I pray that you never remember all that happened to you when you were just 5 days old. All the needle, monitors, tests, etc that you had to deal with. It was hard to protect you and keep you away from pain, but it all needed to be done, so that you would be here with us today. As a happy and healthy young made. The roller coaster has made you a very special boy and has made us as a family and all of our friends, and extended family even stronger. You have helped us to know of friends that we did not know that we had and found a common bond with many. I would not trade this roller coaster life with anyone, but i am glad that the roller coaster portion is slowing down.
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