writing

Sophia has really taken to writing about everything. She is having a great time drawing pictures and then writing the details about the picture. This is something that she does in school daily. Today, she was dressed, had breakfast and it was not time to go yet, so she got out a dry erase board and began to draw. Then she asked me for help to spell something. The picture was of a princess and a witch. The caption, "Please don't take me witch."

I am thinking it is from the Jack and Annie books that she reads at school, or she has a very creative mind.

waiting

two years ago today, we sat, family and friends that are like family in the surgical waiting room of Children's Hospital. We were waiting to hear that your open heart reconstruction surgery went well, that you would be okay and our lives could move forward. Today, we celebrate all that you are and all that you will be. You are a miracle.

Thomas the Train

Miles has recently experienced Thomas the train. He loves looking at the Thomas books and looking for all of Thomas' friends. In one of his books is a train called Cranky. Miles has decided to point at the picture of Cranky and then point at his dad and continue to repeat, "Cranky, Cranky" until his dad acknowledges the fact that he is saying Cranky.

Justin thought that I taught Miles this one. I did not teach him this, however, i would not be surprised if Sophia taught Miles.

the roller coaster of 2006

2 years ago today, oct. 6th, we found out that you had truncus arteriosis. There were many signs that we were able to deny, attempting to believe that you were healthy. As your mom, it broke my heart to think that you were not healthy and whole. Yes, you had all of your fingers and toes, but it was your heart that was broken.

I cried while we were at the cardiologist, knowing deep down that something was wrong. The echo brought more tears while the technician began to label the parts of your heart, this is never a good sign. You were just so peaceful and innocent. your doctors told us the worst news, "your son has a very rare heart defect. Only 1-2% of the population is affected by this heart defect. " and then the best news, "but it is treatable." At that is when the roller coaster began. We were wisked away to Children's Hospital to meet too many people. Even thought it was a Friday, everyone that needed to see us, i.e. doctors, surgeons, chaplins, nurses, social workers, discharge planners were all there. It was all such a whirlwind and we hoped that it was all just a bad dream. But it was not a bad dream, it was real and it was OUR life. I pray that you never remember all that happened to you when you were just 5 days old. All the needle, monitors, tests, etc that you had to deal with. It was hard to protect you and keep you away from pain, but it all needed to be done, so that you would be here with us today. As a happy and healthy young made. The roller coaster has made you a very special boy and has made us as a family and all of our friends, and extended family even stronger. You have helped us to know of friends that we did not know that we had and found a common bond with many. I would not trade this roller coaster life with anyone, but i am glad that the roller coaster portion is slowing down.

Happy Birthday Miles!!

Miles, today you are 2. You are a very smart cookie that has turned our life upside down. You came into this world a little early and decided to make life really interesting for us 5 days after being born. We would not change a thing!! you have brought so much change (in a good way) to our family and so many more. You keep us laughing at your humor ("beat you") and keeps us on our toes with all of your new words and using them correctly. You are our miracle kids!!!
Happy 2nd Birthday--- love
mom, dad and fia