pre-k dating

Sophia let us know recently that she was just getting tired of David. She said as follows:

"This is it, i told David that if he went back with Haley, that we were done. I am not going to have him come back again. I will not be his girlfriend any longer if he keeps this up."

At this point, I needed to check to see that this was actually my 4 1/2 year old and not my 14 1/2 year old. Wow, what is coming up may not be pretty.

mustaches

Sophia began to tell me about a boy in her class. Sometimes, i think that she gets ages confused, but for the most part she is usually correct. She was telling me about Jay is 6 years old and has a mustache. I kept asking her about this mustache. She said is was a real mustache and it was because he was 6 years old. However, her boyfriend David is only 4 or 5 and had a mustache, but it was only a milk mustache. seriously, when did little girls stop playing with barbies and start talking about facial hair???

BALLOONS, BALLOONS, BALLOONS

Right now, it looks like they are just going to balloon the artery instead of placing a stent. He is getting good enough blood flow right now and they would rather wait on the stent and just watch him instead of placing one now. This is good news, but we will need to wait until we see him and we can take him home before we can call this a successful trip.

waiting

waiting for the time to come to leave for the hospital sucks. There are kn0ts in my stomach, i cannot decide if i am hungry or just going to throw up. The minutes seem to tick by slowly, i am tired, but i doubt there will be much sleep tonight, just too much thinking about nothing and everything all at once.

I know that tomorrow will be a long and exhausting day, and we cannot wait for it to be over.

wish for us some sleep and less nervousness about the cath.

Cath countdown

Tomorrow is the big day. I actually think it is going to happen instead of all the other times that i just was not sure it we would get to have it done.

We are just ready for the cath to be done with and to have had everything go smoothly. We are slowly packing out items, making sure that we have plenty of items to keep him busy, when he is allow up and out of bed.

For now, the cath is scheduled for 10:00 a.m., we have to be there at 8:00, nothing to eat after 2:00 a.m. (including milk) and nothing to drink (clears) after 7:30. I think that we will actually have to sneak Sophia out of the house to make sure that he does not see her eating. This may be harder than keep him still for 6 hours after the cath. The cath is expected to take between 4-6 hours. This will of course be a long day. I will try to post tomorrow as the day goes on, but timing may just not work out. Please check the blog to keep an eye on us

Thanks for all your thoughts and prayers.

the Taylor's

Mother's Day

A mother is not a person to lean on, but a person to make leaning unnecessary.
— Dorothy Canfield Fisher

This just seems like the best quote that I have found recently regarding being a mother.

I did not really realize how important mothers day was until I became a mom and also gained a great relationship with my mom. I can think of numerous time I would (and still do) call for advise. Just another idea or looking for support for my idea. Someone to lend an ear, to listen to the frustrations and many joys of being a mother. It is really awesome to watch my mom with Miles and Sophia. To see their relationship grow so quickly and strong is wonderful. I do not remember having a great relationship with my grandmothers, so I value the relationship that Miles and Sophia can have with their grandmothers.

Miles heart defect and hospitalization brought my mom very close. Even at 29 years old, she did not want to see her daughter hurt and wanted to take away the pain. I assume that this is a common feeling of a mother. She continues daily to make the leaning unnecessary.

Mom, thank you for all that you do. I have learned so much from you and need your help daily.

Love always,
your daughter

countdown

It is May 6th, only one more week until the heart cath on May 13th. I actually think that it is going to happen this time instead of the previous 4 times where it was canceled. We are ready to get it over with and be done, but we just want a good outcome. We have known for a while that he had a kink in his Left proximal pulmonary artery. This is an important one and it takes the blood to the lungs. Therefore, we want to make sure that it continues to work well. Right now he is not symptomatic, but this is something to be handled before there is actually a problem. Right now, the only 2 concerned are that I think he is teething again and he usually spikes a high (103) fever with teething and his hemoglobin has been low. We had blood drawn yesterday, so we hope the numbers are better than 2 weeks ago (8.6) and normal is 11-13 for this age.

The heart cath will take between 4 and 6 hours. That is a really long time to wait. But, I do not want them to rush anything and Miles is a complicated kid anyway. Then he has to "sit still", yeah right, for 6 hours. Are you kidding me, 6 hours. So we are starting to pack the bag to keep the little guy entertained. We are getting pretty good at packing this bag, which also includes overnight stuff for us too, since this will be the 4th attempt at the heart cath and bronch.

Everyone is ready for the heart cath to be done and over. It is weighing heavily on us, especially my mom. My parents will continue to keep an eye on us and try to keep us sane while everything is going on. On Saturday, Justin's mom flies in for the week to help keep a watch on Sophia while everything is going on with Miles at the hospital. She will be taking Sophia to and from school and also staying with her while we are at the hospital.

I have been collecting stuff for Sophia and Miles goody bag. Miles is getting new matchbox construction cars and Sophia is getting a book of tattoos. It is always really hard on her when we have to be gone. I know that she is concerned that we will be gone a full month like before, and it is hard to reassure her that it will not be that way, even when you are not really sure.

We all continue to just move on and make it through the day. I do start to reflect back to the beginning days and get sad. It is just so hard to think of those days, I try not to think of them too often. Just remember to give your healthy kids a big hug for me today and prayers would be greatly appreciated.

love,
the ohio taylor family